Friday October 4, 2002

It's been a Cathy Clay kind of couple of weeks.

Thank God for Buzzy is all I have to say. I think she likes to get me just sane enough to drive me insane again but I think that's the healthy kind of relationship because well... just because.

Last week was phenomenal. With the brain tumor conference and what have you... It was a well orchestrated trip that came off without much of a hitch. I was concerned to drive my car up there so I looked on Craigslist and found gold. National Rent a Car took out an ad for people to drive up to San Francisco for free and we had a ride back with Conni. So we picked up the rental and drove up there.

Our first stop was with the Dooley's and we got to see the new Baby, Zoey!

She is the most perfect little girl I have ever seen! She stole my heart and let me tell you... those things... those harmless little creatures are contagious! I love her soooooo much!

Naturally there wasn't enough time to go around. We had to run and then turn in the machine. We left the fucking luggage at home on the boat but for some reason, at the last minute, I picked up some clothes out of my car so we did have a change. The Marriott in San Mateo was where the conference was and it was so nice. Florent was shocked and I think a little taken aback at the opportunity we had being there.

We ran into SF and dropped off the car and ran to the Pot Doc to get my license renewed. That bastard was only going to make it 6 months from the time that I originally went to him which royally pissed me off because those fucking things cost $25 a pop. Luckily the girl at SF Health Dept didn't realize it and gave me my license for 6 months. Yahoo!!!

I tried calling Josh and Tanya and the answering machine kept picking up so I didn't leave a message and finally I did and She said they didn't even get the message. We hopped a bus back to San Mateo which took a while and that was nice. The bus almost took us right to the hotel. I marveled at the luck.

Once we were confused from all the conference stuff going on we found out where we needed to be. Florent had to go to the caregiver's meeting and I went to the benign brain tumor meeting. I was not happy with the way the nurse treated me acting as if I didn't have the same problems as the other because. I had "brain injury" but when I went to the table I found that my condition was listed in the brain tumor phamplet so that made me feel better.

We had wild monkey sex that night. It was nice to just sit and watch TV and chill. The next morning we slept too late and so we missed some of the conference. I met this dude named Jesse that lives in Covina (about 2 hours away) who had a benign brain tumor and had been gamma knifed and other choice things. Looking around at people I felt honored that you couldn't ever tell that I had had brain surgery which has definitely changed my whole outlook on everything.

I met so many wonderful people and everyone sorely missed Samantha our cheerleader. I still haven't gotten it all together but I am still sorting through it all. We leaped out of that conference like bats out of hell with the help of Joe and Sveta. Tanya had sent an e-mail saying we should go to Res Fest. We met at Josh and Tanya's apartment and fucked around. I put on some of her makeup because I had forgotten my own and her amazing lip gloss. We walked to that Thai place and I was ECSTATIC to be out of the conference with my friends. The whole time Joe was driving us to San Francisco I just couldn't get over it. Look how far we have come. The difference from driving down Hwy 42 and the 101... I still couldn't get over it. So there was this love... this amazing love because we were all together and all 3 couples... Me setting up Josh and Tanya and then Tanya's setting up Joe and Sveta it was something out of a big fat love novel.

There is nothing that can ever compare to that.

Sunday October 6, 2002

I'm ragging.

It's been another PTS. Post Traumatic Sunday. Crying, Screaming and calling the Sheriff. Watching him being escorted off the boat because we got into such a bad verbal fight that I stood up ready to slap him in the face. I pulled up my hand ready to deliver the blow and the shock on his face was compounded as assault landed on hit his arm.

You know I just don't get it anymore. Sometimes it feels so right and I think that I'm on top of the world and then other days I feel like I hit bottom and I can't even get my head off the pillow. I can't stand the mess. He fucking knows I get ballistic when I come home and have to clean up after him. It DRIVES ME UP A WALL. Buzzy let us stay at her friend's house so I had a reprieve from staying on the boat.

Waking up this morning made me realize being hunched over and in pain was not the kind of life I wanted to live anymore. I just went nuts. The boat was a mess, there was shit everywhere and it just feels like nothing ever gets accomplished. The car payment is behind and we watched this GIGANTIC pile up happen the other day on Venice Blvd and I got mad at Florent and said "See... if you have a wreck then you would be responsible for all of this mess!" I think he is finally starting to get the fucking hole we are in.

He called me back crying. I'm such a battered woman. Emotionally... I can't take dealing with all these stupid fucked up problems that never have a fucking resolution. I hate living with him. We said exceptionally hateful things to one another today. He wouldn't stop and each time he went lower I hit him even harder. Things didn't used to be like this. He talked to his mother for hours and who fucking knows what she told him but she always seems to agree with me and always has decent advise to give.

Then we started spewing about how much we resent one another. And how he resented me for making him go to Kelly's for Christmas even though he was sick. I was so pissed. He had already had surgery and was recovering and hadn't even moved out of the fucking place. I told him how much I hated him because after I was paralyzed last year I had to go to work because he wasn't fucking working. He's such a god damn baby. I am so sick of writing about how much I detest him and for some reason I always hope for the better but it never happens and I am afraid once it does I won't even fucking care anymore.

I need to get away. I think I should go stay in the woman's shelter until I feel safe enough with myself. I don't know why I quit trusting myself. I don't know if I just let things go enough for so long that there is no way of ever regaining control.

He made a valid point in that since we weren't in school we were both dealt a huge face of reality neither one of us had ever experienced and that could be why we were having the problems we were but still... I let him know how frustrated I was from all the things we have experienced since and how he dumps more and more responsibility on my shoulders and how he's too stupid to realize that I break too and I am broken now and he doesn't take care of things or of me the way that I took care of him.

Boy what a mistake that was.

I feel like packing up my truck and just disappearing from this. I know I was taught that to run away from things was cowardly but I just can't take this life anymore. I want to run to another town or something. Even dickhead mentioned that we should separate for a while and I would love to.

"I want other lovers." I tell him. Now with more and more frequency. When we first talked about getting married he said that I could have other lovers but quickly became possessive once we were married. Once upon a time I couldn't imagine any other man caressing me gently and giving me pleasure but now that's all I think about because I don't want him to touch me anymore. I'm sorry but I really don't appreciate him laying on top of me and falling asleep.

There are so many, many things... He told me today in the height of anger something along the lines of me not being pretty. I hate that. The last asshole that told me that was Keir when we were in Amsterdam and I made sure I fucked him like he would never be fucked again because he was just trying to hurt me. I thought that maybe Florent wouldn't have those things I couldn't stand... how boys behave when they are broken by another woman but now I realize maybe everyone is like that.

My back is cold now. I'm at work because I left my computer here in order to download a program but it didn't finish so I am naturally screwed.

I am in a never ending state of being disappointed. Things are not going my way and I don't know how to assess the situation. I keep looking forward to the future but sometimes forget to live in the present moment. Or maybe because I know there is some kind of better or different future out there for me this all seems like lipstick smeared on a window.

Wednesday October 16, 2002

I had updated my journal really I had but it's all gone because I didn't upload it and there is so much shit on my computer that I couldn't save the file so it got corrupted and fucked up the entire month. I am ready to start trashing shit off my machine. I want my own server.

I had the worst nightmare last night. I killed someone and I was running around trying to hide but I knew I wasn't going to go to jail because I have this fucking thing in my head. I talked with Samantha and she told me it probably was me killing my brain.

There are now two mes. The dream me and the real me. The real me could not distinguish from the dream me today. I woke feeling scared, unrest and frightened that I had hurt someone. There was construction going on outside at fucking 8 am. It woke me up and I had to pee. I was not in a good mood. I am never in a good mood when I wake up.

I talked to the dectective in charge of my domestic violence case and told him how I am having problems and he told me I should go to Daniel Freeman hospital and tell them to send me to Harbor because I am so sick. My eye is twitching, I am always in pain and I am having tremors. I figured I would just walk until I fell to the ground.

It would be nice to get fixed. Samantha sent me a letter expressing her concern for her health because her new doctor brushed her aside and it sounded so horrible. It's so bad that we are not getting the care that we need and I feel very clingy to Sam right now. She is scared to go to the Neurosurgeon by herself and I told her I would fly out there to be with her. We are both scared a lot. I got some very encouraging words from Patsy. (not that was my mother's name) She told me that this was a gift from God and that we get it and he doesn't give you anything you can't handle. I know all these things because I have heard them before but it's always nice to hear them again. She went on to say that we can't blame the people around us for not getting it but that we needed to give them even more love because of the lack of understanding.

I hate Florent. I can't stand him. He just came to pick me up from work and started saying mean things to me about being sick. Hateful things about me not thinking right and I didn't understand. I am so sick of him. I am convinced he is just here to antagonize me. He told me how he came home and cried all day because we don't get along. I told him I was crying at work today too. But I don't think I care enough about him to stick it through. I know I always say that but things have to stack up for me to realize it's not my bag.

He told me that everytime we make love the next day I use his energy against him. I wish there was a way we could get along but I am coming to the realization that no one but me can take care of me. I lose energy when we make love so he is telling me that we need to quit making love. I just need another lover.

I think the dectective was right though. I think I should go to the hospital and tell them my symptoms and make them operate because there is no way anything is ever going to happen if I am not stirring up the shit. I want my own place to live. I can't take it anymore.

Thursday October 17, 2002

I didn't make it to work today. I woke up in the morning and felt so bad I couldn't get out of bed. I feel myself getting weaker and weaker. I had a facial today. She cleaned out my pores and zapped me with this electrical thing that was so cool. Her name was Tanya and we sat there and she chatted me up in Russian. It was very nice. She called me hitranka. Liuda used to call me that too. I miss her. I wish I could find her.

I wish I could be emotionally stable for a while but I am starting to wear thin. I told everyone about my nightmare about killing someone. Guy, one of the programmers at work, told me that I was probably on too much medicine. Samantha told me that I was trying to kill the cyst (because I did stab someone) and Rita took me to a place that was unreal. Florent was just worried if it was him.

That Rita is something else. She used to teach at Esalan. She has Parkinson's and I think she is just so happy when people are nice to her. I know how hard it is to be young and face these problems but to be older and knowing... that's a different story.

My fucking nerves are killing me. It hurts too much to type (which is why I don't type as much anymore). I'm always thinking though... Life is short.

Friday October 18, 2002

God... please let me get either one of the jobs I have interviewed for. I want the one photographing around the states more than anything.

Florent opened my computer and saw that I had written how much I hated him and was so offended. WTF. Going around to places living in hotels sounds like a good idea right now. At least I wouldn't have to clean up after him or even live with him.

I just don't know what to think these days. I am sitting at Mama's sandwich shop here around Artesia Blvd. There is a group of men sitting close to me and Marlin Manson's version of Like a Virgin is playing on my computer as I type these words. My meal is the special, made with old tuna, cheese, and rye bread. The Clam Chowder is too hot to eat. There is half eaten Macaroni salad and a piece of watermelon cut in a triangle. This restaurant reminds of some of the dives I have eaten at on the road. The girl is coming on my computer now and the men are trying not to pay attention. My Purse that my mom bought me when Anne had leukemia is sitting here as well as the leather satchel Jen brought me back from Florence. It broke the other day. Florent took some wire and put it back together.

A lady with a fat gut walked by and I lost my appetite. I'm sick of being fat. I am sick of everything. I think I just should go to the hospital today and make them do the surgery. When the nerves start acting up on my other leg... I wish I couldn't feel myself dying. That's what sucks the most. I think back to the photo of me and you can tell I am smiling in front of the camera because of my eyes and them photographing that scar that I think caused my arachnoid cyst.

"This is Hardcore" is now playing. The soup is gone and so is most of the sandwich. All except for the crust. I was one of those annoying kids that liked the crust cut off my bread if the bread was not fresh. If it was fresh my favorite thing to eat was peanut butter. I used to go to the Rainbow store in Kentucky to get day old bread for 1/3 the cost of fresh bread. Ironkids bread was my favorite.

I think I am in shock. A perpetual state of shock. I don't know if other people that have nervous break downs experiences the same kind of nervous breakdown I did but I am still reeling over this thing. The pain lingers like a memory from that angiogram they did of my heart and my head when I was 17.

I think about killing myself all the time. I hate being alive. I hate living a life where I have no control over my body or my mind. I keep trying to find mushrooms in a field of shit but it's very hard. The neurontin is taken and the meal is finished. My computer is up to 30% from 15. I love having a laptop and finding the directions and then keeping them on my laptop so that when I drive I know where I am going. I have driven a lot lately. Typically Florent takes me to work and then bitchs about taking me. Then I tell him I'll take the fucking car and he can ride the bus. Then he gets mad and tells me he needs a car and I tell him we can't even pay for the one we have. He's such a fucking moron. He starts talking about all these plans and we can barely make it through the day. I wish he would pull his head out of his ass and realize that we need to pay for insurance and a place to live and have nice jobs and do nice things.

But I am slowly coming to the realization that life will never be like that with him.

I have got to get this job traveling. I can't stand it anymore. Itchy feet. I want to go have brain surgery and then start my job the next week. It's the quickest recovery you know... because it doesn't involve motor skills. If I get the other job then I will have Kaiser Insurance in 3 months which will be nice although the thought of using people like cattle bothers me a bit. Recruiting however... is a good field to get into and I think the experience would be invaluable.

It's almost 1 and my next interview is at 2. My makeup is smeared and I need to freshen it up. Lipstick, the whole works but I am not organized enough... there was some lipstick in my purse... what do you know? Now I am going to go to the car and roll a fat doobie.

Saturday October 19, 2002

I got the job! I am going to be working for elson-alexandre.

I start on Monday. They know I am sick and are looking into taking care of me. It's a family business and it seems like I fit into the family. I am ecstatic.

I am going to have to move far, far away but... Kaiser insurance...

Monday October 21, 2002

I'm sitting here in an awful room waiting to see the pain doc. I am nauseated as usual and long for the doctor's office setting of that place that gave me a facial. You walk into one of those places and people are paid to be nice to you and it shows. That's why lots of women out there pay $90 for a facial. It's nice to be pampered although I know that the effects from this visit will last much longer.

I know I shouldn't have but I couldn't help myself last night I got caught up talking to Lynn. Her boyfriend has an arachnoid cyst and he's suffering greatly because of it. It breaks my heart because Kaiser knew about his cyst 10 years ago and they didn't do anything. I have got to do something to change the way people see this thing.

Lynn has said many, many interesting things. She told me how she could tell when it was the cyst that was talking and when it was Warren. That makes me feel so good. Then I wrote a couple of other people whose address I found on the net and they wrote me back. I got caught up doing laundry last night and couldn't talk to Kit. Her son has one and he's just a babe.

I do it for the babes. I don't care so much about myself anymore but I never want anyone to have to suffer the way I have. That's what I said to Stan the man at my interview on Friday. I start work today. They asked me how I was doing...

Lynn told me so many, many things. She's worked for NASA, Mediavision and lives in the house that Netscape built. She lives in Mountain View (the place where the Cisco boys were throwing around millions of dollars just to live there). She fascinates me to no end and I have a feeling the attraction is mutual. I told her that I would go to Warrens next Neurosurgery appointment if she wanted me to.

That's what I would love to do. Set up appointments with people for brain surgery doctor appointments and then go photograph for Elson Alexandre at the country clubs. If I could organize it so that I could do both things at one time that would be great.

On that note I think Samantha and I are acting like big babies. I can go to other people's appointments but taking care of myself is a whole different story. Not a lot of people know she is sick again and I can tell by our phone conversations.

I am so in love with my life again. Lynn was telling me how she left her maniacal husband.

* * *

I didn't last 20 minutes. I was held up at the pain clinic and didn't get to work until 12. I was told a lot of things. I was a great salesman. I was bright and she would love to work with me but I just had this attitude.

I swear to god I feel like the most misunderstood person that ever lived. I can't tell you how discriminated against I feel because even though these people knew I was sick they still ripped into me.

I came home and called Kit. Her son has an arachnoid cyst. He was diagnosed with autism and other problems and I started talking to her and I said "I bet he has these bursts of anger that come from no where and he has behavior problems."

"Yes he does. "

"I bet you have goosebumps."

"Yes I do."

She explained more about the location and size of the cyst "I bet he has balance problems."

"Your right... they diagnosed him with (something I can't remember)".

"I'm sorry but your son is neither autistic nor is does he have this disorder the docs are saying. He has an arachnoid cyst and it is known to cause all these problems but there is no research out there at all. All your sons problems come from that cyst."

"When he was a baby he used to cry and cry and cry until I took his clothes off." I am Cathy Clay Streakier.

"And he didn't want to be held like my other son did." Momma's words echoing in my head about how I never wanted to be held as a baby.

And some of the pieces to the puzzle slowly going into place. I have a broken consciousness. Mine because mine is in my middle cranial Fossa. It splits into all these pieces and I think it might sometimes be like split personality disorder because even though I am conscious of the break when it happens it's like having a seizure.

"...And he can't tell you what is wrong with him. I'm (insert some age here) and I am just now figuring out how to articulate what is wrong with me." And now my heart stops and I think about looking at that brain coloring book waiting for my medication reading about the baby being made and thinking to myself that momma was 8 when she was diagnosed with ovarian cancer and it was slow growing. That means she was probably has cancer when I was conceived because it took another 8 years by the time it was big enough to almost kill her so I think it was totally possible that she was sick when both Anne and I were in the womb.

Ovarian cancer causes birth defects. Anne didn't ruin mom's body as she always claimed she did, I did. And it was Anne she made sick because she wasn't healthy when she was conceived. What was she exposed to in Germany? Did the military do something to her?

I read a plea from a girl that was 17 on the Mass General NS site. She was just diagnosed and she is sick and scared out of her mind. And I have been thinking of what I would write to someone younger than me and what I was like before I had surgery.

Wednesday October 23, 2002

So that guy quit. I guess since I wasn't here the other day and hell broke out at work that other punk decided that he didn't want to work here anymore. Thank God for me I suppose especially since I left that photography hell hole in tears. I don't want to put myself through any of that shit ever again.

Dr. Nago signed my EDD disability papers so that means that I am on my way to having the state of California disability. I was prescribed 150 Vicodan for a month. I was drooling all over them until I spent the afternoon in the bathroom vomiting.

I have been working my ass off all day today. There was an issue here at work and we had to update some security measures so we had to fix everyone's account.

Wednesday October 29, 2002

I haven't been neglecting you... I had a ton of updates to do and there were pages of my diary missing so I had to fix all that today while I was working. It's pretty sad when you have such a computer addiction having 2 computers isn't enough for you.

It looks like I am going to be hanging around on another boat. Philip is French too. A tennis instructor and very dashing. It was nice looking at the difference of the two of them and realize how much I wanted Florent to be as dashing as this one because he has gracefully matured.

I hate Florent right now. He's such a louse. He can't follow through on anything he says he is going to do. It's very frustrating. I want to live alone for a while. I don't know if it's just an overwhelming feeling that I have to be alone, if I am totally full of shit and know that I can't be alone...

I think about lions sometimes and I have a feeling they sometimes roar just to hear themselves roar. I wonder if sometimes I am not the same way. Do I get angry, frustrated because of the relationship? Why am I so content on accepting things that other people won't? I notice everything but just because it takes a while for things to pile up so high that I get extremely agitated because things aren't going my way. I'm not feeling yet again that this relationship is equal and I don't think Florent is doing everything he can to even understand how to relate to me on those levels because he's too stuck up his own ass to work for "corporate America" after he told me he was sick of what he was doing and wanted to start programming.

I am also doing my relationship meter. Now that things are closer to 2 years and I see that things have not changed and suspect they won't ever do I just shake it off to experience and go on with my life? Just because I can't share a living space with Florent does that mean I have to throw the baby out with the bath water?

I am also at a crux about what to do for Thanksgiving. We have been invited to 2 Thanksgivings now... both up North. Buzzy wants to make it with Rae. I dunno...

I am sick of writing shit... I was laying here watching and feeling my cyst earlier. My fingers are burning from working which is another reason I haven't been writing much. I am over medicated and sometimes I will just pop some Vicodan just to chill out. Dez said something interesting. She told me that he might be part of my health problem because I am not taking on the burden of one person. I am sick, working for 2 people and Florent... It's not about him. It's about me.

I was sitting here watching my heart beat. When I sit a certain way I and hold my head that way I can feel my cyst pulsating and even watch it move around my left eye. It's like watching your heart beat on the inside. Everything stops... I have the strangest vision these days. I will be looking at something and what's directly in the center is unfocused while what is just a little further is all clear. I have tried on glasses at the 99 cent store and they checked my vision and told me that it was normal.

I also find it very interesting to be on drugs and out in public. Driving down the street each and every car resembles it's owner and says different things to me. The car (much like mine) is wounded near the headlight. It gives out a snarl as it drives by and the owner is not much different.

Then there are other things that are interesting.

I am trying hard not to lose my mind completely. I know there are many things that are wrong... but it's kind of hard trying to explain them. When you form you form in sheets and lawyers. And many of the cells that come together for very defined layers... kind of like an onion... There is a plant here and I have not watered it in ages. I forget to water it. So there is no water getting to the tips of the plant so it slowly dies from the root and makes it way into the leaves.

If they could figure out that when you kill off the root and by the time the damage shows it has already killed the path from the root to the end. The same goes for humans I believe. I think most people die because they have nervous system problems. Their organs slowly degenerate over time and the nerves just release themselves until they are too weak to control the organs. I feel the degeneration. I can feel what it feels like to die this way and it makes me so mad that nothing has been done.

I once said that I was prejudice. I am only prejudice against people that get diseases by not being careful. They bring diseases upon themselves and perhaps that's the only way they know how to deal with life. Maybe they think that being unhealthy is something that they deserve but I don't know. I wish I had more answers. All I know is that I have an incurable auto immune deficiency disease that is killing my central nervous system and it still feels like no one gives a fuck.

I am trying to get back in touch with my more psychic powers and tapping into that knowledge base that I have access to because my consciousness is broken. I can pick things up and put them back there and apply certain principals to my life. Following through however... that's another story.

 

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